Wednesday, October 21, 2009


wednesday, and hopeful. our morning started at five and a little rough. five am sharp in the shower i hear, "ouch ****", and i know they have begun. making lunch another and another and so on...
by the time i checked in with her at 5:20 six down. even that is a lot for TN patients, but then again, maybe it is not. we are new to this world and this amazing group of people known as Trigeminal Neuralgians. Breathe... and they are gone as quickly as they came for her.
Her appointment was yesterday and we liked the doctor very much. Dr. Brent Morgan in Dallas. Lots of questions and concerns came from us and a lot of info and he wants her pain free talk and we feel better. he is sending her to another neurologist only one more time. he absolutely wants to make sure it is not MS. once he knows for sure, even though he is almost certain it is not, he is moving forward. he gave her lots of options, but feels she is a really good candidate for MVD surgery. he thinks she is a typical TN on the left with a vessel pressing. he really wanted to know what SHE wanted. what we wanted, and she explained that if she could help it, she does not want to live with this. he explained it is a very personal decision and that sometimes people feel they CAN live with it, but she is young, and agrees they should try to make the pain go away. sooooooo, it a nutshell we need to rule out MS again. that will be next week. i will keep everyone posted.
as for me, i am going to be the rock she needs. i am going to pick my friends brains to see what they think. all of my tn friends are living with this everyday and i trust their opinions. i am grateful for their opinions.
also my family has been great. thanks guys.
i am going to get advised today for school. bring it! haha.

2 comments:

  1. Keeping you both in my prayers and the doctors as well. Thanks for keeping me posted.

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  2. thanks sharhonda. i do not think you are on my facebook. i ended up losing some things due to a virus. urgh. hate those things. thanks for your wishes.

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